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Take the rough with the smooth
Well readers, we seem to be having quite a good period at the moment. Very good in fact. Please don’t get me wrong, Samuel is still having seizures every day. But at the moment he doesn’t seem to be...
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Getting it right
Samuel and I spent the day today with our friends at Julia’s House. I’ve come home feeling knackered, which is probably because I did a lot of nattering (I am a chatterbox to be honest) and having to...
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Seizure monster has gone missing (and left his lazy assistant in charge!)
I have absolutely no idea where I should start with what I want to say, what I want to tell you. In my previous blog post A day to remember, I told you that for one day last Friday, Samuel had no...
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Celebrate: 50 days
Today we are celebrating. We had to give Samuel his emergency medicine Midazolam today. You may think that wouldn’t be something to celebrate, but what we are celebrating is that has been 50 days since...
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Keep calm and ask Mum
As you know we are in hospital for Samuel to start the Ketogenic Diet. I wrote in a previous blog post, Tricky Customer, that I was mainly nervous about the doctors and nurses and their approach to...
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A Samuel update
(Warning: This post contains poo references) It’s been a while since I updated you on how Samuel is doing on the Ketogenic diet, so I thought I’d bring you up to speed. Right, where to start. Things...
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Seizures suck
I was almost going to call this blog post ‘Missing in action’ as that’s how I feel I’ve been lately. But this title sums up our mood quite well! We had our brief spell in hospital in early January for...
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